风湿性疾病患者病耻感现状及其影响因素分析-现代医学

风湿性疾病患者病耻感现状及其影响因素分析

单位：1. 中南大学湘雅二院风湿免疫科, 湖南长沙 410011;
2. 中南大学湘雅二院临床护理教研室, 湖南长沙 410011

分类号：R593

出版年·卷·期（页码）：2022·50·第六期（683-687）

摘要：

目的：了解风湿性疾病患者病耻感现状及其影响因素，为制定针对性干预措施提供依据。方法：通过方便抽样的方法对200例风湿性疾病患者进行问卷调查，问卷包括一般资料调查表、慢性疾病病耻感量表。结果：风湿性疾病患者慢性疾病病耻感量表(SSCI)总分为(37.99±13.22)分，内在病耻感(24.21±9.95)分，外在病耻感(13.78±5.07)分。年龄(r=-0.175,P=0.007)、治疗效果(r=-0.196,P=0.005)与SSCI得分呈负相关，毛发变化(r=0.196,P=0.005)、医疗总费用(r=0.191,P=0.007)与SSCI得分呈正相关。年龄、毛发变化、治疗效果、医疗总费用是风湿性疾病患者病耻感的影响因素，可解释患者病耻感变异原因的15.6%(F=6.248,P=0.001)。结论：风湿性疾病患者普遍存在病耻感，医务人员应根据风湿性疾病患者病耻感的影响因素采取针对性干预措施，降低患者的病耻感水平。

Objective: To understand the current status of stigma in patients with rheumatic diseases and its influencing factors, and to provide basis for the formulation of targeted intervention measures. Methods: A total of 200 patients with rheumatic diseases were selected by convenient sampling method and investigated by general data questionnaire and chronic disease stigma scale. Results: The total score of stigma scale for chronic illness(SSCI) was (37.99±13.22) points, internal stigma was (24.21±9.95) points and external stigma was (13.78±5.07) points. Age (r=-0.175, P=0.007) and treatment effect (r=-0.196, P=0.005) were negatively correlated with SSCI score, while hair change (r=0.196, P=0.005) and total medical expenses (r=0.191, P=0.007) were positively correlated with SSCI score. Age, hair change, treatment effect and total medical expenses were the influencing factors of stigma in patients with rheumatic diseases, which could explain 15.6% of the variance of stigma in patients (F=6.248, P=0.001). Conclusion: Stigma is prevalent in patients with rheumatic diseases. Medical staff should take targeted intervention measures according to the influencing factors of stigma in patients with rheumatic diseases, in order to reduce the level of stigma and improve the quality of life of patients.

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